Lupus Research—Told Congress 2011!

LRI’s National Coalition Seizes the Moment for Lupus Research in D.C.

Congresswoman Lucille Roybal-Allard of California (second from R) with representatives from Lupus LA

Congresswoman Lucille Roybal-Allard of California (second from R) with representatives from Lupus LA

In 50+ meetings on MARCH 15th, advocates blanketed Capitol Hill to spread the word about lupus, and countless more sent the messages through facebook, twitter, and emails.

Lupus Advocacy Day 2011

LRI Told Congress:

Fund Research at the National Institutes of Health
Keep America’s biomedical research enterprise strong! Investments in NIH maintain and create jobs—and people with lupus count on the full continuum of biomedical research that NIH conducts to better understand lupus and find new treatments for it.  Don’t cut the current NIH budget for fiscal year 2011!

Still time to help us drive this point home! Sign this online petition through the Ad Hoc Group for Medical Research: http://www.ipetitions.com/petition/preservenihfunding/

Keep Funding the Children’s Hospitals Graduate Medical Education Program
The new budget proposes to zero out funding for this program that supports training in childrens’ hospitals for pediatric rheumatologists and other specialists. Your advocates made an impassioned plea to keep the program afloat.

Support the “National Lupus Education Program”
To diagnose lupus, doctors need to know about lupus. Many people go undiagnosed for years. Your advocates asked for support in including $2 million in the budget of the Office of Minority Health at HHS in the Fiscal Year 2012 Labor/HHS Appropriations Bill to continue a new nationwide education program for health professionals.

 

Lupus Advocacy Day 2011

TOGETHER FOR COMRADERIE AND CONTEXT THE DAY BEFORE, MARCH 14TH

The day before the Hill visits, our 30+ National Coalition advocates gathered together to soak up inspiring messages on such topics as:

  • Unmet needs and gaps in services in pediatric lupus from Northwestern’s Marisa Klein-Gitelman, MD, MPH
  • Progress and challenges in educating doctors about lupus (EHDLI Program) and countering racial disparities in diagnosis and care
  • Best practices in state advocacy initiatives from Lupus Foundation of Mid & Northern New York’s Kathleen Arntsen