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National coalition

The Patients’ Voice for Lupus Research

The Lupus Research Institute (LRI) National Coalition is the advocacy network of state and local lupus organizations united to prevent, treat and cure lupus.

The National Coalition:

  • Promotes education and awareness of the seriousness of lupus.
  • Advocates for the eradication of lupus through rigorous public and private supported research.
  • Collaborates to increase funding for novel research in lupus.
  • Empowers lupus patients to effectively advocate for improved treatments and a cure.

The Coalition unites lupus groups from both coasts and the nation’s major urban centers—New York, Chicago, Los Angeles, San Francisco, Washington, D.C.—and from the following states:

AlabamaIndianaNew York
CaliforniaMarylandPennsylvania
ColoradoMassachusettsRhode Island
DelawareMichiganVirginia
FloridaNew HampshireWest Virginia
Illinois New Jersey  

LRI National Coalition Members & Partners »

In its work to advance awareness of lupus and advocate for increased funding of research into the disease, the Coalition collaborates with numerous organizations on the state and national levels. Collaborators include healthcare associations, women’s organizations, scientific institutions, and government representatives.



Recent Lupus Research Institute National Coalition achievements and initiatives include:

Mobilizing lupus research:
The National Coalition drove the call for and secured the multidisciplinary research plan for lupus at the National Institutes for Health.  Published in summer 2007, The Future Directions of Lupus Research now guides the nation’s investment in lupus research.

Championing Clinical Trials: 
The National Coalition educates doctors and people with lupus about the surge in potential new treatments now in clinical trials—and the need for everyone to step up, enroll, and do their part.  The Coalition’s most powerful tool:  LupusTrials.org, which is educating communities nationwide about trials and their potential.

Eliminating Racial Disparities:
With deep roots in urban America, the National Coalition deals daily with the predominance and severity of such lupus complications as kidney and cardiac disease in blacks, Hispanics, Asians, and people from other racial and ethnic backgrounds.  To combat these disparities, the Coalition briefs Congress, collaborates with national organizations, and educates and assists underserved communities.


National Coalition News
»

National Coalition Online Store »

Support the National Coalition in Raising Lupus Awareness

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