The Lupus Research Institute, in collaboration with its National Coalition members, is active at the federal and state levels of government to ensure that the voice of the lupus patient is heard. We aggressively advocate to influence health policy that is in the best interest of the lupus community.
Advocacy priorities at the LRI include:
- Investment in the biomedical research needed to deliver new treatments and a cure
- Expanded health care access to ensure that people with lupus can afford proper medical treatment
- Urging members of the Senate and House of Representatives to join the Congressional Lupus Caucus to increase awareness among legislators of issues related to people with the disease
- Elimination of health care disparities in lupus to reduce barriers to care, especially among racial and ethnic minorities.
Learn more about the issues we have been working on – visit our advocacy news section.
LRI’s grassroots advocacy efforts need you. With a basic understanding of the legislative process and your lupus story, you can be an effective advocate.
To get you started we have been developing resources. These will be useful for new participants and as a refresher for more seasoned advocates.
These resources will help you work with members of Congress and State legislators to influence health policy to benefit those impacted by lupus.
Addressing Access to Care Webinar Series
Part 1: A Basic Guide for Advocates – Watch this webinar that covered advocacy basics such as how Congress works, how a bill becomes a law, the budget and appropriations process, and how to work with members of Congress.
Part 2: Implementation of the Affordable Care Act - What Advocates Should Know – Watch Part 2 to learn more about how the Affordable Care Act will affect people with lupus and how you can make a difference in its implementation in your state.
News on Key Issues Affecting People with Lupus
Periodically visit the LRI’s Legislative Action Center to see what issues the LRI is working on.
How-to Advocate Toolkit
Click here to view a helpful guide to advocacy.
If you are interested in receiving alerts when we could use your help, please sign up here.