LRI National Coalition Voices Lupus Needs to Congress
Be a Virtual Advocate and Be Heard!
Congress listend to lupus patients as the Lupus Research Institute National Coalition visits the U.S. Capitol for 2015 Lupus Advocacy Day March 24.
Members of the Coalition gathered in Washington from the major urban centers across America – as far away as Los Angeles and as close as Pittsburgh. Collectively we visited over 50 members of Congress and their staff.
Now you can help make sure every member of Congress from every state hears how they can help lupus patients -- join the LRI Coalition TODAY as a virtual advocate.
Use LRI’s automated Legislative Action Center to email your federal legislators and ask them to help:
Speed up New Drug Approvals and Include the Patient in the Process
- Both sides of Congress – the House and the Senate – are working on “21st Century Cures” legislation to improve how new drugs are tested and approved. We ask all Members of Congress to support including ways to speed up new drug development for lupus. And we ask that patients are consulted at all stages as drugs are researched and considered for approval by the Food and Drug Administration (FDA). Click here to take this action.
Write FDA to Include Lupus in Public Meetings
- FDA would like to take the patient perspective into account when considering potential new treatments. FDA asked for public feedback on which diseases to focus on in upcoming meetings on drug development. We ask Members of Congress to urge FDA to focus one of these public meetings on lupus as a devastating disease that desperately needs better, safer treatments and a cure. Click here to take this action.
Increase Funding for Research to Improve Treatment
- We ask Congress to devote at least $32 billion in 2016 for biomedical research at the National Institutes of Health (NIH) in the next budget. NIH research is essential to give patients better treatments and find a cure for diseases like lupus. Click here to take this action.
Support Bill to Make Biologic Drugs Affordable for Patients
- All patients should have access to the best medications available. But some insurance companies increase the amount paid by patients requiring them to pay a high percentage of the cost – which could run thousands each month. We ask Members of Congress to sponsor the Patient Access to Treatments Act (PATA) HR 1600 to protect patients from having to choose between paying more than they can afford and risking serious consequences by forgoing the medications they need. Click here to take this action.
Please use our automated tools to easily email or phone your federal representatives.
In just minutes, you can represent the lupus community to Congress – the nation’s leaders whose decisions directly impact patients' lives!
Special thanks go to our 2015 Lupus Advocacy Day sponsors: GlaxoSmithKline (GSK), Bristol-Meyers Squibb (BMS), UCB, Mallinckrodt Pharmaceuticals, Genentech and the Biotechnology Industry Organization (BIO).