The Lupus Research Institute National Coalition gathered in Washington March 24-25 to advocate with Congress on behalf of the lupus community.
Learn about the progress being made:
- Congressional Lupus Caucus
Andrew W. Callahan, Health Staff for Rep. Tom Rooney
Insight into why Representative Tom Rooney helped co-found the Congressional Lupus Caucus and what he hopes to achieve.
- Food and Drug Administration’s Patient-Focused Drug Development Initiative
Sara Eggers, PhD, Center for Drug Evaluation and Research, FDA
Patient-Focused Drug Development initiative is a program of the FDA engaging the patient’s perspective on what it’s like to live with their condition.
- House 21st Century Cures Initiative and Senate Healthier Americans
Kathryn G. Schubert, Vice President, Cavarocchi-Ruscio-Dennis Associates, L.L.C.
Two important legislative initiatives in the House and Senate that aim to improve the process of developing and delivering better treatments to America’s patients.
- Update On Lupus at National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Robert H. Carter, M.D., Deputy Director, NIAMS
Update on lupus research at NIAMS and partnerships with internal and external organizations to accelerate scientific progress in lupus including the Accelerating Medicines Partnership.
UPDATES ON LRI
- Better Treatments to Transform Lives Today: Prevent & Cure Lupus Tomorrow
Diane Gross, National Program Director
How lupus patients and their families can help advance development of better and safer treatments.
- Teaching Fellows in Lupus – Novel Pilot Going Strong
Amy Caron, Teaching Fellows in Lupus Project, Lupus Research Institute
Progress of the pilot program Teaching Fellows in Lupus in educating primary care providers to recognize, diagnose and treat lupus.
- Effective Lupus Advocacy
Brent Jaquet, Senior Vice President, Cavarocchi-Ruscio-Dennis Associates, L.L.C.
Top three tips for how to advocate effectively!
The LRI National Coalition met with some 50 members of Congress and their staff. But as a virtual advocate, you can extend that reach and help make sure every member of Congress from every state hears how they can help lupus patients get better treatment as science searches for a cure.
Use LRI’s automated Legislative Action Center to email your federal legislators and ask for their help.