Congressional Lupus Caucus Educates Colleagues on Lupus

Speaking at the May 7 Congressional Lupus Caucus briefing on Capitol Hill during Lupus Awareness Month 2015, Dr. Rosalind Ramsey-Goldman discussed lupus symptoms, prevalence and treatments and the need for more research. She also discussed the contributions of the Lupus Initiative.  Dr. Ramsey-Goldman is Solovy/Arthritis Research Society Research Professor, Northwestern University Feinberg School of Medicine and Medical Director, Northwestern Memorial Hospital Clinical Research Unit.

Conceived of by the LRI, the Lupus Initiative, is a collaborative project with the Offices of Minority Health and Women’s Health, and the Surgeon General’s Office and will be launching later this year. Dr. Ramsey-Goldman has been a leader in the Teaching Fellows in Lupus pilot rolling out under the Lupus Initiative. Teaching Fellows in Lupus aims to alleviate racial disparities and reduce the time to diagnose and treat lupus by giving providers the tools they need to recognize symptoms and refer patients on to proper treatment and specialist care.

The pilot enlists rheumatology fellows (rheumatologists in training) as educators. It tests the new teaching model in four cities with different healthcare systems—Atlanta, Chicago, San Francisco and New York.

As Caucus co-chair, Rep. Eddie Bernice Johnson (D-TX) announced the briefing in an op ed piece in The Hill entitled “Lupus is Not Arthritis.” Other Caucus co-chairs are: Rep.Thomas J. Rooney (R-FL); Rep. Bill Keating (D-MA) and Rep. Ileana Ros-Lehtinen (R-FL).