Advocating for Enforcement of Affordable Care Act

Along with the more than 200 patient organizations of the “I Am (Still) Essential” coalition, the Lupus Research Institute and S.L.E. Lupus Foundation successfully advocated for the U.S. Department of Health and Human Services (HHS) to make critical changes in Essential Health Benefits for 2016 that protect patients.

But our work continues to ensure the new requirements we fought to gain are adhered to and enforced.  The LRI and the S.L.E. Lupus Foundation signed a strong letter from the “I Am (Still) Essential” coalition urging HHS Secretary Sylvia Mathews Burwell and her staff to conduct a thorough review of the 2016 Qualified Health Plans and reject any plans that do not comply with the new patient protections.

The letter voiced the continued need for improved access to care and plan transparency while warning against discriminatory practices such as high patient cost-sharing and excessive use of prior authorization and other medical management techniques.

We will keep you posted on the response and subsequent developments!