Lupus Agencies of NYS Advocates Achieve Critical Awareness and Advocacy Success

The Lupus Agencies of New York State (LANYS) made a significant impact during Lupus Awareness Month on May 18th by promoting lupus awareness and legislation when they gathered in Albany for the 8th Annual Lupus Awareness Day sponsored by Senator Joseph Griffo and Assemblyman Fred W. Thiele, Jr.  The annual event educates New York State’s elected policymakers and staff, state agency officials, health care professionals, and the general public about lupus and the need for greater program support for education, outreach and research initiatives. Click here to read the press release from Assemblyman Thiele. 

Key pieces of legislation the LANYS shared with lawmakers include:

  • Taxpayer check-off to establish voluntary donations for lupus education/prevention/outreach programs
  • Establishment of lupus education and outreach program and Advisory Council comprised of representatives of people with lupus, their families and health care providers specializing in lupus
  • Creation of the lupus research enhancement program and fund
  • Regulation of Step Therapy protocol putting treatment decisions back in the hands of health care professionals rather than insurance companies
  • Pharmacy Choice Bill ensures consumers have the option to choose a local participating pharmacy and are not forced to mandatory mail order

LANYS is comprised of the various lupus organizations that provide program services in NYS. Advocates attending the event represented Lupus and Allied Diseases Association, Lupus Alliance of Long Island/Queens, Lupus Alliance of Upstate New York, Lupus Foundation of America, S.L.E. Lupus Foundation, Alliance for Lupus Research, Lupus Research Institute, and Lupus Friends and Family Foundation.

View NYS Assembly and Senate chamber video presentations:


New York State Senators Joseph A. Griffo, Diane J. Savino and Kevin S. Parker with advocates representing Lupus and Allied Diseases Association, Lupus Alliance of Long Island/Queens, Lupus Alliance of Upstate New York, Lupus Foundation of America, S.L.E. Lupus Foundation, Alliance for Lupus Research, Lupus Research Institute, and Lupus Friends and Family Foundation.


Dedicated lupus advocate Tiffany Peterson in Albany pictured with NYS Resolution memorializing Governor Andrew M. Cuomo to proclaim May 2016 as Lupus Awareness Month in the State of New York. Tiffany was part of a large delegation of advocates in Albany representing the  S.L.E. Lupus Foundation, Alliance for Lupus Research, and Lupus Research Institute.


Lupus Advocate Tiffany Peterson with NYS Senator Kevin S. Parker


NYS Assemblyman Fred W. Thiele, Jr. with Kathleen Arntsen, President of Lupus Allied Diseases Association and advocates representing Lupus and Allied Diseases Association, Lupus Alliance of Long Island/Queens, Lupus Alliance of Upstate New York, Lupus Foundation of America, S.L.E.


Left to right:
Kathleen Arntsen, President of Lupus Allied Diseases Association; Advocate Jackie Taylor; NYS Senator Andrew Lanza; Tiffany Peterson, Advocate representing ALR, S.L.E. Lupus Foundation and LRI; Advocate Lisabeth Iglesias.