First to Tell Congress 2010!

LRI National Coalition’s Patients’ Voice for Lupus Research Heard on Capitol Hill

A powerful day on Capitol Hill, our voices heard!

Thirteen LRI National Coalition groups from around the country, including all of the lupus organizations from California and New York state, hit the Hill with the message that people with lupus need proper insurance coverage and care—and a cure.


Advocates pictured above, at their congressional meetings with (clockwise)
Rep. Maurice Hinchey (NY), Rep. Lucille Roybal-Allard (CA), Rep. Daniel Maffei (NY),
aides to Rep. Andre Carson (IN), aides to Sen. Barbara Boxer (CA), Rep. Michael Arcuri (NY),
Rep. Bill Owens (NY), and aides to Sen. Dianne Feinstein (CA).

An educated patients' voice for lupus!

The day before spreading out across Capitol Hill, our advocates honed their understanding of the issues and ways to approach legislators from:

  • Experts from the U.S. Food & Drug Administration, who spoke on the drug approval process
  • Experts from the Office of Minority Health at the Department of Health and Human Services, who updated everyone on the national lupus provider health education program initiated in part by the LRI
  • Experts on health care reform legislation
  • ...others!

A powerful day online, our voices heard!

TwitterLALupusLady: Why you should #TellCongress to fund biomedical research & health professional education programs, b/c someone you know has #Lupus

TwitterRT @ColorMeFierce: RT @LupusResearch: #TellCongress Stick to America’s commitment to save lives, reduce disease, stimulate economy—help

TwitterPrincessLilla: #TellCongress to support #LupusResearch ...WE NEED A CURE! LIKE NOW, BEFORE MY DAUGHTER EVER EVEN HAS A CHANCE OF BEING DIAGNOSED

Twitterrandyhate: RT @LupusResearch: #TellCongress to include $35 billion for research at the NIH in FY11 - to fund medical breakthroughs, new treatments, and new cures! #lupus

and dozens more, along with Facebook and email messaging!

With your voice added to the first lupus advocacy day of 2010, we got the message across:

  • increase government research funding
  • support federal programs for eliminating racial disparities in access to good care and treatment
  • increase access to care nationwide
  • vote for effective health insurance reform!

LUPUS ADVOCATE, THANK YOU FOR ADDING YOUR VOICE!

THANKS to sponsors Human Genome Sciences and Genentech / Biogen Idec for their support of LRI National Training & Advocacy Day 2010.