Learn about the results of the LUMINA study and its implications for reducing racial disparities in lupus at a seminar conducted by the National Institute on Minority Health and Health Disparities (NIMHD) in collaboration with the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) on May 17 at 2:00 – 3:30 PM. You can attend in-person at the National Institutes of Health or watch it live on your computer. LUMINA stands for LUpus in MInority populations NAture vs. nurture and is a multi-ethnic cohort study, initially funded by NIAMS.
The presentation, Impact of Ethnicity on the Course and Outcome of Lupus: Lessons from LUMINA, is being given by lead researcher Dr. Graciela S. Alarcón. The study is following 600 Caucasian, African American, and Hispanic patients to determine how different factors including genetics influence diagnosis, treatment and outcomes among patients with lupus from ethnic minority groups. In her presentation, Dr. Alarcón will discuss the impact of ethnic background on lupus, as shown by data from the LUMINA study. (Click here for abstract)
Lupus is two to three times more common in African American women than in Caucasian women and is also more common in women of Hispanic descent. African American and Hispanic women are also more likely to experience more severe disease symptoms.
The Lupus Research Institute has been working to alleviate racial disparities in lupus for over a decade. With our National Coalition of advocates from the state and local lupus organizations, identified the need for medical education on lupus and led the national effort on Capitol Hill. As a result of the LRI's aggressive advocacy efforts, a major report from the Secretary of Health and Human Services to the U.S. Congress documented the need for a comprehensive national provider health education program to help eliminate the barriers of racial disparities in the early medical diagnosis and treatment of lupus. Largely as a result of the LRI efforts, nearly $5 million has been allocated by the federal government to provide healthcare professionals with comprehensive training to be able to diagnose lupus promptly and treat appropriately. Called the Lupus Initiative, the education program is led by the Office of Minority Health in the federal Department of Health and Human Services in partnership with the U.S. Surgeon General and the Office of Women's Health.